Craniosynostosis: What Moms Need to Know About Surgical Options

Head shape

If your child has been diagnosed with craniosynostosis, it’s natural to feel concerned and overwhelmed. As a mom, it’s important to educate yourself about the condition and the surgical options available to address it. Here’s what you need to know:

Understanding Craniosynostosis

Craniosynostosis is a condition in which the bones in an infant’s skull fuse together too early, before the brain is fully formed. This can lead to head shape abnormalities and, in some cases, increased pressure on the brain. While the exact cause of craniosynostosis is not always clear, it can sometimes be related to genetics or other factors.

Surgical Options

When it comes to treating craniosynostosis, surgery is often necessary to correct the issue and allow the brain to grow properly. There are a few different surgical options available, and the best approach will depend on the specific needs of the child. The two main types of surgery for craniosynostosis are:

Endoscopic Strip Craniectomy

This minimally invasive procedure involves making small incisions in the scalp and using an endoscope to remove the fused suture. It is often used for cases of single suture craniosynostosis and can result in less visible scarring and a quicker recovery time.

Open Cranial Vault Remodeling

In this more extensive surgery, the skull is reshaped by removing the affected bone and reconstructing the skull to allow for normal brain growth. While it is a more invasive procedure, it may be necessary for more complex cases of craniosynostosis.

What to Expect

As a mom, it’s understandable to have concerns about your child undergoing surgery. Before the procedure, your healthcare team will provide you with detailed information about what to expect and how to prepare. It’s important to follow their guidance and ask any questions you may have.

After the surgery, your child will require close monitoring and follow-up care to ensure proper healing. This may include imaging scans to assess the skull and brain development, as well as physical therapy if needed. Your medical team will guide you through the post-operative care process and provide support along the way.

Support for Moms

Coping with a child’s medical condition can be emotionally challenging for moms. It’s important to seek support from family, friends, and healthcare professionals. Connecting with other moms who have been through similar experiences can also provide a sense of reassurance and understanding.


As a mom, your primary concern is the well-being of your child. In the case of craniosynostosis, being informed about the condition and the surgical options available is crucial. By educating yourself, seeking support, and working closely with your healthcare team, you can provide the best care for your child as they undergo treatment for craniosynostosis.


Q: Will my child have visible scarring after surgery?

A: The extent of scarring will depend on the type of surgery performed. Endoscopic strip craniectomy typically results in less visible scarring, while open cranial vault remodeling may leave more noticeable scars. Your surgeon can discuss scarring and potential options for minimizing it.

Q: What is the long-term outlook for children who undergo surgery for craniosynostosis?

A: With appropriate treatment and follow-up care, children often have positive long-term outcomes. The goal of surgery is to allow for normal brain growth and development, and most children can go on to lead healthy, active lives.

Q: Are there support groups for parents of children with craniosynostosis?

A: Yes, there are support groups and online communities where parents can connect, share experiences, and find support. Your healthcare team may be able to provide resources for these groups.