The ABCs of Craniosynostosis: A Guide for Busy Moms

Head shape

As a busy mom, it’s normal to worry about your child’s health and development. One condition that you may not be familiar with is craniosynostosis. This guide will provide you with the essential information about craniosynostosis so that you can be informed and prepared.

What is Craniosynostosis?

Craniosynostosis is a condition that occurs when the bones in an infant’s skull fuse together too early. This can lead to abnormal skull growth and shape, and in some cases, it can also affect the development of the brain.

Signs and Symptoms

Some common signs of craniosynostosis include an unusual head shape, an abnormal feeling or appearance of the infant’s skull, and in some cases, developmental delays. It’s important to consult with a pediatrician if you notice any of these signs in your child.

Diagnosis and Treatment

If your pediatrician suspects craniosynostosis, they may refer you to a pediatric neurosurgeon or a craniofacial team for further evaluation. Imaging tests such as CT scans or MRIs may be used to confirm the diagnosis. Treatment often involves surgery to correct the premature fusion of the skull bones and allow for normal brain growth.

Support and Resources

Facing a diagnosis of craniosynostosis can be overwhelming, but you are not alone. There are support groups, online resources, and organizations dedicated to providing information and support to families dealing with this condition. Connecting with other parents who have been through a similar experience can be a valuable source of support and guidance.


As a busy mom, it’s important to be aware of the signs and symptoms of craniosynostosis and to seek medical attention if you have any concerns about your child’s skull development. With early diagnosis and appropriate treatment, children with craniosynostosis can lead healthy and fulfilling lives.


Q: Is craniosynostosis a common condition?

A: Craniosynostosis occurs in about 1 in every 2,000 live births, making it a relatively rare condition.

Q: Can craniosynostosis be detected during pregnancy?

A: In some cases, craniosynostosis can be detected during a prenatal ultrasound, but it is often not diagnosed until after birth.

Q: What are the long-term effects of craniosynostosis?

A: With proper treatment, most children with craniosynostosis go on to lead normal, healthy lives. However, some may require additional surgeries or ongoing care to address complications.

Q: Are there any non-surgical treatments for craniosynostosis?

A: Surgery is the primary treatment for craniosynostosis, but the specific approach will depend on the individual child’s condition and the expertise of the medical team.