The Real Facts About Craniosynostosis: A Mom’s Guide

Head shape

As a mom, it’s natural to worry about your child’s health and well-being. When it comes to craniosynostosis, it’s important to have the right information to understand what it is, how it’s diagnosed, and what treatment options are available. This guide will provide you with the real facts about craniosynostosis, so you can feel informed and empowered when making decisions for your child.

What is Craniosynostosis?

Craniosynostosis is a condition that occurs when the bones in a baby’s skull fuse together too early, before their brain has fully grown. This can lead to an abnormal head shape and, in some cases, increased pressure on the brain. It’s important to note that craniosynostosis is not caused by anything the mother did or didn’t do during pregnancy.

How is Craniosynostosis Diagnosed?

Craniosynostosis can often be diagnosed by a pediatrician during a physical exam. If there are concerns about the shape of the baby’s head, imaging tests such as a CT scan or MRI may be ordered to confirm the diagnosis and assess the extent of the condition. Early detection is key in managing craniosynostosis, so don’t hesitate to seek medical attention if you have any concerns about your child’s head shape.

Treatment Options

The main treatment for craniosynostosis is surgery to separate the fused skull bones and allow the brain to grow properly. The timing and specific approach to surgery will depend on the severity of the condition and the child’s overall health. It’s natural to feel anxious about your child undergoing surgery, but rest assured that craniosynostosis is a common and highly treatable condition. Your child’s medical team will walk you through the process and provide support every step of the way.

What to Expect After Surgery

Recovery after craniosynostosis surgery can vary from child to child, but most children are able to go home within a few days of the procedure. Your child’s medical team will provide guidance on post-surgery care and follow-up appointments to monitor their progress. With proper care and attention, most children go on to lead healthy, happy lives after craniosynostosis surgery.


The journey of navigating craniosynostosis can be overwhelming, but it’s important to remember that you’re not alone. Connect with other parents who have been through similar experiences, lean on your support system, and trust in the expertise of your child’s medical team. By arming yourself with the real facts about craniosynostosis, you can make informed decisions and advocate for the best possible care for your child.


Q: Can craniosynostosis be detected before birth?

A: While some cases of craniosynostosis can be detected through prenatal ultrasounds, the condition is often diagnosed after the baby is born.

Q: Will my child need additional surgeries as they grow?

A: In some cases, additional surgeries or treatments may be necessary to address cosmetic or functional issues, but your child’s medical team will monitor their progress and discuss any future interventions if needed.

Q: Are there long-term effects of craniosynostosis?

A: With prompt diagnosis and appropriate treatment, most children with craniosynostosis go on to have normal brain development and lead healthy lives without long-term effects.