Dealing with Craniosynostosis: What You Need to Know


Dealing with Craniosynostosis: What You Need to Know

Craniosynostosis is a condition that affects the skull of infants and occurs when the sutures between the bones of the skull close too early. This can lead to skull deformities and hinder the growth of the brain. If your child has been diagnosed with craniosynostosis, it’s important to understand the condition and how to manage it properly.

Symptoms of Craniosynostosis

It’s essential to be aware of the symptoms of craniosynostosis, which may include:

  • Abnormal head shape

  • Visible or palpable ridges along sutures

  • Increased intracranial pressure

  • Developmental delays

If you notice any of these symptoms in your child, it’s crucial to consult a pediatrician or a craniofacial specialist for a proper diagnosis.

Treatment Options

There are various treatment options available for craniosynostosis, depending on the severity of the condition. Surgery is often recommended to correct the skull deformities and allow the brain to grow properly. The surgery is typically performed by a pediatric neurosurgeon or a craniofacial surgeon.

Before deciding on surgery, your child’s healthcare team will conduct a thorough evaluation to determine the best course of action. It’s essential to discuss all treatment options and any potential risks with your healthcare provider to make an informed decision.

Post-Surgery Care

After surgery, it’s important to follow the post-operative care instructions provided by your child’s healthcare team. This may include monitoring for signs of infection, keeping the surgical site clean, and ensuring proper wound healing. Your healthcare provider will schedule follow-up appointments to monitor your child’s progress and address any concerns.

It’s normal to feel anxious or overwhelmed during this time, but remember that you are not alone. Seek support from friends, family, or a support group to help you through this challenging period.


Craniosynostosis is a condition that affects the skull of infants and requires prompt diagnosis and appropriate treatment. Surgery is often necessary to correct the skull deformities and ensure proper brain growth. It’s essential to work closely with your child’s healthcare team to navigate this challenging journey and provide the best care for your child.


Q: Can craniosynostosis be detected during pregnancy?

A: Craniosynostosis is typically diagnosed after birth based on physical examinations and imaging studies. It is not usually detected during pregnancy.

Q: Is craniosynostosis a common condition?

A: Craniosynostosis occurs in about 1 in every 2,500 live births, making it a relatively rare condition.

Q: Will my child have long-term effects from craniosynostosis?

A: With proper diagnosis and treatment, most children with craniosynostosis go on to lead healthy lives without long-term effects. Regular follow-up appointments with healthcare providers are essential to monitor your child’s progress.