Craniosynostosis: What Every Parent Needs to Know


Craniosynostosis: What Every Parent Needs to Know

Welcome, parents! Today, we’re here to talk about a condition called craniosynostosis, which can affect infants and young children. It’s important to understand what craniosynostosis is, how it can be diagnosed, and what treatment options are available. Let’s dive in!

What is Craniosynostosis?

Craniosynostosis is a condition in which one or more of the fibrous sutures in an infant’s skull close prematurely, before the brain has fully grown. This can cause the head to be misshapen and may lead to increased pressure on the brain.

How is Craniosynostosis Diagnosed?

Craniosynostosis is typically diagnosed shortly after birth or during infancy. Your child’s pediatrician may notice an abnormal head shape during a routine check-up. Further imaging tests, such as X-rays or CT scans, may be done to confirm the diagnosis.

Treatment Options for Craniosynostosis

The treatment for craniosynostosis usually involves surgery to correct the premature fusion of the sutures. The goal of the surgery is to allow the brain to grow properly and to reshape the head to a more normal appearance.

What to Expect After Surgery

After the surgery, your child may need to wear a helmet or headband to protect the surgical site and help with reshaping the skull. Regular follow-up appointments with the pediatrician and surgeon will be necessary to monitor your child’s progress.


Craniosynostosis can be a challenging diagnosis for parents to receive, but with early detection and appropriate treatment, most children with this condition can go on to lead healthy and normal lives. Be sure to consult with your child’s healthcare providers for personalized information and guidance.


Q: Is craniosynostosis a common condition?

A: Craniosynostosis occurs in about 1 in every 2,500 live births.

Q: Can craniosynostosis be detected during pregnancy?

A: It is difficult to detect craniosynostosis before birth, as it usually becomes apparent after the baby is born and the skull shape is visible.

Q: Are there different types of craniosynostosis?

A: Yes, there are several different types of craniosynostosis, depending on which sutures are affected in the skull.