Craniosynostosis 101: Everything You Need to Know

Dear parents,

If you’ve heard the term craniosynostosis, you may be feeling overwhelmed or confused. Rest assured, we’re here to guide you through everything you need to know about this condition that affects the skull in babies. Craniosynostosis occurs when one or more of the sutures in an infant’s skull fuse too early, leading to abnormal skull growth.

What causes craniosynostosis?

The exact cause of craniosynostosis is often unknown, but it can sometimes be genetic or related to certain syndromes. Other risk factors may include premature birth, multiple births (twins, triplets), and maternal smoking during pregnancy.

Signs and symptoms

Some common signs of craniosynostosis include an abnormally shaped skull, a hard ridge along the affected suture, and developmental delays. It’s important to consult with a pediatrician if you notice any unusual signs or symptoms in your baby.

Treatment options

The main treatment for craniosynostosis is surgery to correct the shape of the skull and allow the brain to grow properly. The surgery is typically performed in the first year of life, and recovery time is generally quick. Your child will be closely monitored by a multidisciplinary team of healthcare professionals throughout the process.

Aftercare and follow-up

After surgery, your child may need regular check-ups to monitor their progress and growth. Physical therapy and early intervention services may also be recommended to support your child’s development.


1. Can craniosynostosis be prevented?

Unfortunately, there is no known way to prevent craniosynostosis. However, early detection and treatment are key to ensuring the best possible outcome for your child.

2. Will my child have lasting effects from craniosynostosis?

With timely diagnosis and appropriate treatment, most children with craniosynostosis go on to lead normal, healthy lives. It’s important to follow your healthcare team’s recommendations for aftercare and follow-up to ensure the best outcome for your child.

3. How do I cope with the diagnosis of craniosynostosis?

Receiving a diagnosis of craniosynostosis can be overwhelming, but remember that you are not alone. Reach out to support groups, healthcare professionals, and other parents who have been through similar experiences. Taking care of yourself and seeking emotional support are crucial during this time.

We hope that this guide has provided you with a better understanding of craniosynostosis and how to navigate the challenges that may come with it. Remember, you are a strong and capable parent, and your child is in good hands with the right support and care.