Dealing with Craniosynostosis in Your Child: What You Need to Know


Dealing with Craniosynostosis in Your Child: What You Need to Know

Being a parent comes with its own set of challenges, and finding out that your child has craniosynostosis can be overwhelming. However, it’s important to stay informed and educated about this condition in order to provide the best care for your little one. Here’s what you need to know about dealing with craniosynostosis in your child.

What is Craniosynostosis?

Craniosynostosis is a condition in which the sutures in a baby’s skull close too early, causing problems with normal brain and skull growth. This can lead to an abnormal head shape and, in some cases, increased pressure on the brain. It is important to seek medical attention if you notice any unusual changes in the shape of your child’s head.

Treatment Options

Upon diagnosis, your child’s pediatrician may refer you to a pediatric neurosurgeon or craniofacial surgeon for further evaluation and treatment. The most common treatment for craniosynostosis is surgery to release the affected sutures and allow the skull to grow properly. The surgery is typically performed in the first year of life to prevent any potential brain development issues.

Coping and Support

Dealing with a medical condition in your child can be emotionally taxing. It’s important to seek support from friends, family, and medical professionals. Connecting with other parents who have gone through similar experiences can also be incredibly helpful. Remember, you are not alone in this journey, and there are resources available to help you navigate through it.


Dealing with craniosynostosis in your child may feel daunting, but with the right information, support, and medical care, you can ensure that your child receives the best possible treatment. Stay informed, stay connected, and remember to take care of yourself as well. You’ve got this!

Frequently Asked Questions

1. Is craniosynostosis a common condition?

Craniosynostosis occurs in about 1 in every 2,500 live births, making it relatively rare.

2. Are there long-term effects of craniosynostosis?

With early intervention and proper treatment, the majority of children with craniosynostosis go on to lead healthy, normal lives without any long-term effects.

3. How can I find support for dealing with my child’s craniosynostosis?

There are various support groups and online communities specifically dedicated to parents of children with craniosynostosis. These can be valuable sources of information and emotional support.