Understanding Craniosynostosis: A Parent’s Guide


As a parent, it can be scary to hear that your child has been diagnosed with craniosynostosis. There are so many questions and concerns that come to mind, and it can be overwhelming to try to understand what this condition means for your child. But fear not, we’re here to help guide you through this journey and provide you with the information you need to better understand craniosynostosis.

What is Craniosynostosis?

Craniosynostosis is a condition in which the sutures in a baby’s skull close too early, causing problems with normal brain and skull growth. The skull is made up of several bones that are connected by sutures, which allow the skull to grow and expand as the brain grows. When these sutures close prematurely, the skull can’t expand properly, leading to abnormal head shape and potentially increased pressure on the brain.

Types of Craniosynostosis

There are different types of craniosynostosis, named after the affected suture. These include:

  • Sagittal synostosis: The sagittal suture runs from front to back on the top of the head.

  • Coronal synostosis: The coronal suture runs from each ear to the top of the head.

  • Metopic synostosis: The metopic suture runs from the top of the head down to the forehead.

  • Lambdoid synostosis: The lambdoid suture runs across the back of the head.

Diagnosis and Treatment

Craniosynostosis is usually diagnosed in the first few months of a baby’s life, either through physical examination or imaging tests such as a CT scan or MRI. Once diagnosed, treatment typically involves surgery to reshape the skull and relieve pressure on the brain. The timing and approach to surgery will depend on the type and severity of the condition, as well as the overall health of the child.

Living with Craniosynostosis

While the idea of surgery may be daunting, it’s important to remember that most children with craniosynostosis go on to live happy, healthy lives after treatment. Early intervention and appropriate care can help minimize potential developmental delays and ensure the best possible outcome for your child.


Craniosynostosis can be a lot to take in, but with the right information and support, you can help your child navigate through this condition and thrive. Remember that you’re not alone, and there are many resources and medical professionals available to help you every step of the way. Stay strong, stay informed, and never hesitate to reach out for help when you need it.

FAQs about Craniosynostosis

Q: Will my child’s head shape improve on its own?

A: In most cases, the head shape will not correct itself without surgical intervention. It’s important to consult with a healthcare professional to determine the best course of action for your child.

Q: How long does recovery take after craniosynostosis surgery?

A: Recovery time can vary, but most children will need several weeks to fully recover from craniosynostosis surgery. Your child’s healthcare team will provide you with specific guidelines for post-operative care and follow-up appointments.

Q: Will my child have long-term developmental issues after surgery?

A: With proper medical care and early intervention, the vast majority of children with craniosynostosis go on to develop normally and lead healthy lives. It’s important to closely monitor your child’s development and seek early intervention services if needed.