Understanding Craniosynostosis: What Every Mom Needs to Know

Head shape

As a mom, it’s natural to worry about your child’s health and well-being. When it comes to craniosynostosis, a condition that affects the skull, understanding the basics can help you navigate through any concerns you may have. Here’s what every mom needs to know about craniosynostosis.

What is Craniosynostosis?

Craniosynostosis is a condition in which one or more of the fibrous joints between the bones of an infant’s skull close prematurely, before the baby’s brain has fully formed. This can cause problems with normal brain and skull growth. In some cases, it can also lead to increased pressure within the skull, which may require surgical intervention.

Causes and Symptoms

The exact cause of craniosynostosis is not always clear, but it can be related to genetic mutations or certain environmental factors. Some of the symptoms to look out for include an abnormal head shape, a hard ridge along the affected sutures, and slowed or no progress in head growth as the baby grows.

Diagnosis and Treatment

If you suspect that your baby may have craniosynostosis, it’s important to consult with a pediatrician or a specialist. They can evaluate your baby’s head shape and may order imaging tests such as CT scans or MRIs to confirm the diagnosis. Treatment typically involves surgery to correct the premature fusion of the skull bones and allow the brain to grow normally.

Support and Resources

Dealing with a diagnosis of craniosynostosis can be overwhelming, but you are not alone. There are support groups and online communities where you can connect with other parents who have gone through similar experiences. These resources can provide you with valuable information, emotional support, and a sense of community during this challenging time.


As a mom, it’s important to stay informed about craniosynostosis and be aware of the signs and symptoms. By being proactive and seeking medical help if you have any concerns, you can ensure that your child receives the necessary care and treatment. Remember, you’re not alone, and there are resources available to support you every step of the way.


Q: Can craniosynostosis be prevented?

A: Craniosynostosis is not always preventable, as the exact cause is not always known. However, early detection and timely treatment can help prevent complications and promote healthy growth.

Q: How common is craniosynostosis?

A: Craniosynostosis occurs in approximately 1 in every 2,000 live births, making it a relatively rare condition.

Q: What is the long-term outlook for children with craniosynostosis?

A: With proper treatment, most children with craniosynostosis go on to lead healthy, normal lives. Regular follow-up with healthcare providers is important to monitor growth and development.